Trying to keep up... 2017

Sorry I haven't posted anything in a while, but honestly I have been typing only thing is that they are just Drafts. I been using this as my person journal... I'm sorry I haven't kept y'all posted it just I've had so much personal things going on in fact I got sick last year for keeping things in. This is why I've kept this more as a journal which I'm sorry for. This week I have IVIG, so if I have time I will try to keep.

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Stiff Person Syndrome Awareness!

My friends with SPS raising AWARENESS! MY friends without SPS raising awareness! And Me...

Weekly check up

So was made it to my physical therapy this morning knowing that right afterwards I had my check up with nurse practitioner, but when I got there they decided it would be best to see her before that way she could see how the new medication was affecting me if it was. Either way we went she decided to start me back on tizanadine every 2 hours, occupational therapy, aquatic therapy, and message therapy. HA there is only so much that can be done in three day I guess we are going to have to find a way to stay either longer or figure out a way to make it all the things I've got to do. Now I've got to see her every week for a check up until my doctor appointment with my neuro. YAY! Well not really if you didn't catch my sarcasm... I've got this crazy idea that maybe I need a break. I need to spend a lot of time on my homework and studies, and staying in San Antonio doing all these things keeps me away from all of it. I constantly have to explain to my teachers why my assignmen

Stiff Person Syndrome T-shirts

I'm Hi guys here is where you can place your Stiff Person Syndrome T-shirt order. Thank you for helping raise awareness that way we can be SEEN and HEARD about this RARE disease. It might just be the push to get help we need to get doctors understand it better, and maybe start doing more research for all of us! Each T-shirt is $20.00 I'm using the flat rate boxes to make is easier to sort out and fast to get them out to those who order. So for 1 T-shirt it's $5.80 extra for shipping, because only one of them fits. Anything more then 1 T-shirt is $12.35 and with here you order as many T-shirts as you like. These prices are only for the U.S. people placing orders anyone who want one from another country can email my person account at vanessa.rmz.88@gmail.com If a mistake is made in the order please return the T-shirt and I'll give you a full refund on your shipping and send you the right T-shirt. Also read about make whatever kind of donation you can

The Good the Bad of my Life With Stiff Person Syndrome

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