The Good the Bad of my Life With Stiff Person Syndrome

The plate sale turn out was great! Most of my family showed up from out of town and the ones from Laredo, so did some of mine and Vic's friends showed up to help. It's great to know that I've got my family and friends supporting me. We sold all the plates, some sodas, waters, and for some people who shall remain name less even sold them self lol. jk! Any ways it went great! I can't believe we were able to pull it off.

So today is the Steak Plate sale my family and friends are throwing in order for my mom and I to be able to attend the Mayo Clinic this summer! I'm suppose to be asleep at the moment, but since all the hype I just cant see myself falling asleep! The support from the community has been beyond super! Family from all over Texas is coming in to help out today and are starting to set up as we speak... Last night my friend Ashley and I stayed up doing poster, t-shirts and all these little details that had to be done so everyone wouldn't have to stress. Oh my if it wasn't for some of my friends and family today wouldn't have happened! There support has been tremendous! Not to mention the fact that the local News Cast show a bulletin about today's plates. Oh do I hope its a success I don't want any burden on my family! As much as I give them now its crazy how they are still by my side ! I cant complain one bit... and with their straight and courage is what keeps me...

Hey you band students remember that! Well today I went to the band hall after Mr. Duran gave me the opportunity to talk to the students about Stiff Person Syndrome. The reason I was mostly there was to show awareness to what this disease really is, and how it effect my life and people like me. Also Mr. Duran wanted me to go in order to ask the student to help me reach my goal to get to the Mayo Clinic. I'd like the say the response was wonderful the students were receptive of what I had to say. Some weren't even afraid to ask question... including how do I go to the bathroom. Crazy HUH?! But I answers honestly because I wanted them to know that this disease effects a lot of things not just what they read online and in books like some doctors think! I was so excited to be able to see all these young faces... hehe young faces I'm just like four years older, but in all reality some of these kids had never put a face to a disease in there life and for them to now be able to do...