Hey you band students remember that!
Well today I went to the band hall after Mr. Duran gave me the opportunity to talk to the students about Stiff Person Syndrome. The reason I was mostly there was to show awareness to what this disease really is, and how it effect my life and people like me. Also Mr. Duran wanted me to go in order to ask the student to help me reach my goal to get to the Mayo Clinic.
I'd like the say the response was wonderful the students were receptive of what I had to say. Some weren't even afraid to ask question... including how do I go to the bathroom. Crazy HUH?! But I answers honestly because I wanted them to know that this disease effects a lot of things not just what they read online and in books like some doctors think!
I was so excited to be able to see all these young faces... hehe young faces I'm just like four years older, but in all reality some of these kids had never put a face to a disease in there life and for them to now be able to do so. They can see that yes there are other weird disease out there that we just don't know about.
Another question I got ask a lot actually in every class block was,
" How do I keep so positive, even though I know I'm facing this disease?"
The only answer I could give them was the support system I have, including the faith I have, and knowing that I've got it much better off then other people do. Yes I have pain, Yes I've got bad day, and have to visit the hospital once, twice, and even three times a month, but I'm still here! and at the end that's all that matters!
Mr. Duran explain about the difficulties I had during marching band season and concert season, and like I told them with out him there, Mr. Lopez and other directors I would have been kicked out of band along time ago. Because no matter what they always allowed me be involved in the band program even if that meant me not playing and instrument or marching, I took pictures attend most events, and just was able to do it all because of them and their support. AND FOR THAT.... I THANK THEM SO MUCH!
At the end Mr. Duran explained my situation about the problems I was facing with getting to the Mayo Clinic and asked if they would help me out by giving little monetary donation. AND LET ME TELL YA...
THEY DID!
Like D says even after we leave the band program we are still family!
THANK YOU J. B. ALEXANDER BAND... for all your help and support!
Well today I went to the band hall after Mr. Duran gave me the opportunity to talk to the students about Stiff Person Syndrome. The reason I was mostly there was to show awareness to what this disease really is, and how it effect my life and people like me. Also Mr. Duran wanted me to go in order to ask the student to help me reach my goal to get to the Mayo Clinic.
I'd like the say the response was wonderful the students were receptive of what I had to say. Some weren't even afraid to ask question... including how do I go to the bathroom. Crazy HUH?! But I answers honestly because I wanted them to know that this disease effects a lot of things not just what they read online and in books like some doctors think!
I was so excited to be able to see all these young faces... hehe young faces I'm just like four years older, but in all reality some of these kids had never put a face to a disease in there life and for them to now be able to do so. They can see that yes there are other weird disease out there that we just don't know about.
Another question I got ask a lot actually in every class block was,
" How do I keep so positive, even though I know I'm facing this disease?"
The only answer I could give them was the support system I have, including the faith I have, and knowing that I've got it much better off then other people do. Yes I have pain, Yes I've got bad day, and have to visit the hospital once, twice, and even three times a month, but I'm still here! and at the end that's all that matters!
Mr. Duran explain about the difficulties I had during marching band season and concert season, and like I told them with out him there, Mr. Lopez and other directors I would have been kicked out of band along time ago. Because no matter what they always allowed me be involved in the band program even if that meant me not playing and instrument or marching, I took pictures attend most events, and just was able to do it all because of them and their support. AND FOR THAT.... I THANK THEM SO MUCH!
At the end Mr. Duran explained my situation about the problems I was facing with getting to the Mayo Clinic and asked if they would help me out by giving little monetary donation. AND LET ME TELL YA...
THEY DID!
Like D says even after we leave the band program we are still family!
THANK YOU J. B. ALEXANDER BAND... for all your help and support!
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