The Good the Bad of my Life With Stiff Person Syndrome

During PT and OT I'd get my vital check and once in a while I'd have my heart rate a little high and some times a little low. Not to mention my blood pressure that was just dang right LOW sometimes and couldn't do crap. That wasn't until one day I'm rolling myself into the clinic and I get my pulse check and it's in the 160s HOLY CRAP they all just look at me and tell me how do I feel I'm like fine nothings wrong why? They show me the monitor I'm like well I feel fine... Right away they are like no we can't work out your going to get sick I'm like guys really I'm fine...NOPE they start calling every doctor they can first my Cardio nothing no answer he is busy, next Dr. C. my asthma doc she's like if she feels fine go for it, they are still not convinced they call my PCP Dr. B. total trip killer!!! NO to high needs to rest I look at my mom I'm like dude that's all I've been doing all day resting! At this point I'm like maki...

Now comes the topic of PT and OT from before... This all happened in 2011 to 2012... Yes I was no longer at physical therapy in Dr. G. clinic because it was only for her patients, but once a week I attend what was called Wellness kinda like gym membership at Dr. G. clinic and get therapy from them in order to use the off weighted device I did that till I could. So off I went back to where I was before at Out Patient Rehab for Baptist Hospital. I was going to PT and OT at the out patient clinic from the hospital where they made things fun and I was able to joke around with them, but still get my work done till I couldn't and I'll tell you why in a minute. For now I'll tell you what I was doing I was getting better slowly, not a big difference from the last place because this place didn't have the off weighted device. Let me clarify something before I go on at Dr. G's clinic the Physical therapist there was amazing I can't complain. She and her staff made my...

So I've been M.I.A. for a couple years now and I guess I should update you on what's going on now. To start off I'd like to say that a lot has changed, and when I mean a lot I mean WOW really that much huh?! Let's start off with since you've heard from me last I've got a new Neuro Doc and she is amazing. Not that my other Doc wasn't just that this one has a little better understanding of SPS, and isn't afraid to tell you see means business! She isn't the only neuro on my case now it's a team of doctors that collaborate, but she's the GRAND S*TH when it comes to my case. I've got the same PCP which I wouldn't change in the world, unless she was like, "Vanessa I can no longer have you as my patient anymore." Trust me I've heard that once or twice since my last post. So ok lets get to the good stuff right?! Well new Neuro... Check! No more IVIG for more then a year... WAIT WHAAAAT!!! Yeah that was me from September of...