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Update or Rant take it how you want it!

What can I say I’m always saying I’m going to do something and I don’t. Meh better late the never I guess! So I’m back you can say or even ask for how long till my next post, but I can’t even tell you, since I promised last time that I would try to do one every week. Well we all see how that worked out. Ha I guess you can say I’m a joke when it comes to blogging especially if I’m trying to talk about my life. SPS is a bitch and not even I can keep up with It sometimes.  Sooo here is here’s a gist of what’s been going on.   As I think I wrote before I had a set back. Last time since last November I felt funny I just didn’t feel myself I felt run down, the pain was going back, and I knew I was having spasms all over. So, when I went to see my endocrinologist I ask to have my GAD level tested. In reality I think I was doing it for shits a giggles to give myself a piece of mind that nothing was going on. Yeah well that didn’t happen the following week when I went to actually see the
Recent posts

Let’s try this one more time!

Let’s try this again... I’m going to try to do a post each week or month at least. That’s my goal!!! Not going to lie a bit long... Last month I went to the neurologist, and got news that I could be having either be having a flare up or having a relapse. For the past couple of months I had been feeling off with more spasms and pain the usual. I can usually take pain pretty good by now, but there were days I just couldn’t move felt frozen in my own body. So after New Year I had IVIG scheduled for Thursday, Friday, Monday, and Tuesday. Well during the weekend I had a party to attend out of town. Honestly I don’t think I did much during the party but it did run late. Both days I felt fine no problem with IVIG side effects nothing, but then came Monday first of all I had to wake up early to go get blood drawn. When I went in I asked for I don’t know how to explain it. You know when they tell you that you know your body the best I just had this feeling to ask them to run my GAD levels

Trying to keep up... 2017

Sorry I haven't posted anything in a while, but honestly I have been typing only thing is that they are just Drafts. I been using this as my person journal... I'm sorry I haven't kept y'all posted it just I've had so much personal things going on in fact I got sick last year for keeping things in. This is why I've kept this more as a journal which I'm sorry for. This week I have IVIG, so if I have time I will try to keep.

Happy New Years!!!

HAPPY NEW YEARS! So this year started great with some family around and fireworks! The first week was a bit crazy I had IVIG and had to go back home early to San Antonio. It had it for the usual three days. Although I had my eye on the prize, but God had other plans. Thursday I had a mini seizure then came Friday I had a seizure that lasted over 24hrs. I was visiting Laredo was placed in the hospital and no doctor wanted to take my case. After a whole night they realized I needed to come back home! BUT the hospital I needed to go to wasn't expecting patents. So I was sent to another hospital that has no idea what my disease is or what to do. I've been waiting since Sunday to get transferred to University Hospital. I was told by mid morning but I'm not holding my breath till im there I'll bel them. So I got sick big set back! I was walking staying at home alone! I guess it's back to 24hr watch from my parents!!! :(

Oh Gosh it December Already and All This has Happened!

Who would have known that year would go back so fast it started off rocky to say the least and now look at where I am... As January came it was sure that I wouldn't see Physical and Occupational Therapy for a while. My heart just wasn't taking it, so it seemed that was off the table till there was a solution. Although we all knew what that was we didn't want to think about it, surgery. Once the time came the doctors told my mom she'll be out in one hour that hour came and went, and I was still in surgery my cardio doctor was not taking no for an answer. My parents were updated on my status so they weren't to alarmed, but when he came out and said I was out and in recovery he explained to them that no matter their efforts my heart rate was never going to be normal at that alone was a problem. I was going to have to be a heart medication to help stabilize my heart rate, but it was almost never going to go lower then 80 beast per min. You might think that's norma

October and God's Choice

 So October came and went so fast that it was crazy. It seemed like only summer when were getting everything together for the SPS think in Vegas, but here it was that day pasted so fast. Not to mention the night some of didn't want it to end! Although we left now being able to put a face to that person we had been talking to over the computer we left with even stronger friendships. Here are some of the picture from dinner             Like I said that day came and went so far and I'm glad people got to hang out afterwards. I on the other hand had to come back home. So I started Physical and Occupational therapy since then and I'd like to think I'm doing pretty good. I've had little set backs but nothing major. Although I'm pretty sure I've aggravated every muscle in my body. I have my up and down days just like everyone else, but thank God I have my mom with me. She always tells me..." When y

So I'm back! To Physical and Occupational Therapy that is!

So it's August and my doctors have been asking when do you think you can go back, and I'd always answer when insurance lets me! LOL   Finally I went to see my neuro Dr. Sanka and she tells me I'm doing so much better then she had even seen me. I was still have spasms and stiffness, but she mention how it was finally time to take the chance on Physical and Occupational Therapy while I'm doing so well with the new treatment. I said fine in a way I couldn't wait to go back I missed being in San Antonio and my friends. See you have to understand something with me lets go back a couple of years so you can see how I see things.   I moved to San Antonio at 17 to attend Our Lady of the Lake University were I was pursing my dreams of becoming a doctor myself. I was halfway done with my credits I was the youngest junior in school I think. My I guess official freshmen year I spent it like many well not really but I had my freedom for the first time. I worked the first