Skip to main content

Happy New Years!!!

HAPPY NEW YEARS!
So this year started great with some family around and fireworks! The first week was a bit crazy I had IVIG and had to go back home early to San Antonio. It had it for the usual three days. Although I had my eye on the prize, but God had other plans. Thursday I had a mini seizure then came Friday I had a seizure that lasted over 24hrs. I was visiting Laredo was placed in the hospital and no doctor wanted to take my case. After a whole night they realized I needed to come back home!

BUT the hospital I needed to go to wasn't expecting patents. So I was sent to another hospital that has no idea what my disease is or what to do. I've been waiting since Sunday to get transferred to University Hospital. I was told by mid morning but I'm not holding my breath till im there I'll bel them.

So I got sick big set back! I was walking staying at home alone! I guess it's back to 24hr watch from my parents!!! :(

Comments

Popular posts from this blog

Stiff Person Syndrome Awareness!

My friends with SPS raising AWARENESS!                         MY friends without SPS raising awareness!                                                                                  And Me...                                      

Let’s try this one more time!

Let’s try this again... I’m going to try to do a post each week or month at least. That’s my goal!!! Not going to lie a bit long... Last month I went to the neurologist, and got news that I could be having either be having a flare up or having a relapse. For the past couple of months I had been feeling off with more spasms and pain the usual. I can usually take pain pretty good by now, but there were days I just couldn’t move felt frozen in my own body. So after New Year I had IVIG scheduled for Thursday, Friday, Monday, and Tuesday. Well during the weekend I had a party to attend out of town. Honestly I don’t think I did much during the party but it did run late. Both days I felt fine no problem with IVIG side effects nothing, but then came Monday first of all I had to wake up early to go get blood drawn. When I went in I asked for I don’t know how to explain it. You know when they tell you that you know your body the best I just had this feeling to ask them to run my GAD levels ...

Stiff Person Syndrome T-shirts

I'm Hi guys here is where you can place your Stiff Person Syndrome T-shirt order. Thank you for helping raise awareness that way we can be SEEN and HEARD about this RARE  disease. It might just be the push to get help we need to get doctors understand it better, and maybe start doing more research for all of us!  Each T-shirt is $20.00  I'm using the flat rate boxes to make is easier to sort out and fast to get them out to those who order. So for 1 T-shirt it's $5.80 extra for shipping, because only one of them fits. Anything more then 1 T-shirt is $12.35 and with here you order as many T-shirts as you like.  These prices are only for the U.S. people placing orders anyone who want one from another country can email my person account at vanessa.rmz.88@gmail.com If a mistake is made in the order please return the T-shirt and I'll give you a full refund on your shipping and send you the right T-shirt.  Also read about make whatever kind of donation...