Skip to main content

Happy New Years!!!

HAPPY NEW YEARS!
So this year started great with some family around and fireworks! The first week was a bit crazy I had IVIG and had to go back home early to San Antonio. It had it for the usual three days. Although I had my eye on the prize, but God had other plans. Thursday I had a mini seizure then came Friday I had a seizure that lasted over 24hrs. I was visiting Laredo was placed in the hospital and no doctor wanted to take my case. After a whole night they realized I needed to come back home!

BUT the hospital I needed to go to wasn't expecting patents. So I was sent to another hospital that has no idea what my disease is or what to do. I've been waiting since Sunday to get transferred to University Hospital. I was told by mid morning but I'm not holding my breath till im there I'll bel them.

So I got sick big set back! I was walking staying at home alone! I guess it's back to 24hr watch from my parents!!! :(

Comments

Popular posts from this blog

Stiff Person Syndrome Awareness!

My friends with SPS raising AWARENESS!                         MY friends without SPS raising awareness!                                                                                  And Me...                                      

Stiff Person Syndrome T-shirts

I'm Hi guys here is where you can place your Stiff Person Syndrome T-shirt order. Thank you for helping raise awareness that way we can be SEEN and HEARD about this RARE  disease. It might just be the push to get help we need to get doctors understand it better, and maybe start doing more research for all of us!  Each T-shirt is $20.00  I'm using the flat rate boxes to make is easier to sort out and fast to get them out to those who order. So for 1 T-shirt it's $5.80 extra for shipping, because only one of them fits. Anything more then 1 T-shirt is $12.35 and with here you order as many T-shirts as you like.  These prices are only for the U.S. people placing orders anyone who want one from another country can email my person account at vanessa.rmz.88@gmail.com If a mistake is made in the order please return the T-shirt and I'll give you a full refund on your shipping and send you the right T-shirt.  Also read about make whatever kind of donation...

Where I am today...

A lot has happened since I've wrote last... see I've came and went to the Mayo Clinic with more question and no answers. So I've decided that my journey with the Mayo Clinic is over. And now I'm losing faith with the doctors I have... See things don't seem to add up anymore, and the one person who was trying to put things together is no longer at the faculty I was in. Although we still keep in touch and is helping me get though somethings. SO as of now I got to physical therapy is three times a week and that is if they have availability since the main pt left. They try to fit me in as much as possible, and have me stay there as long as I can in order to try to get back to where I was before. Although to tell you the truth all this madness going on with the doctors and medication has just made things worst. To start off since I came back my medication dosage has dropped drastically. See before I was on: Tizandine 4mg every 2-4 hrs. Baclofen 40mg twice 4x a day Valium...