Skip to main content

Happy New Years!!!

HAPPY NEW YEARS!
So this year started great with some family around and fireworks! The first week was a bit crazy I had IVIG and had to go back home early to San Antonio. It had it for the usual three days. Although I had my eye on the prize, but God had other plans. Thursday I had a mini seizure then came Friday I had a seizure that lasted over 24hrs. I was visiting Laredo was placed in the hospital and no doctor wanted to take my case. After a whole night they realized I needed to come back home!

BUT the hospital I needed to go to wasn't expecting patents. So I was sent to another hospital that has no idea what my disease is or what to do. I've been waiting since Sunday to get transferred to University Hospital. I was told by mid morning but I'm not holding my breath till im there I'll bel them.

So I got sick big set back! I was walking staying at home alone! I guess it's back to 24hr watch from my parents!!! :(

Comments

Post a Comment

Popular posts from this blog

Stiff Person Syndrome Awareness!

My friends with SPS raising AWARENESS!                         MY friends without SPS raising awareness!                                                                                  And Me...                                      
Post a Comment
Read more

What's going on with life now!

So you might think I have it all going for me now... yeah that's not the deal see I haven't been able to go back to physical therapy or occupational therapy nor have I been able to go back to the gym. I'm on more medication then I have ever been. My cardio has given me release to go back and do all those things, but I've got obstacles after obstacles to go through. First they cardio doc wanted all my doctor's to give me the OK to go back. So second my neuro doc gave me the OK to go back to pt and ot, because I was stiffer then I was before. She continued my IVIG but keeps pushing chemo, although I don't want it I rather stay on IVIG a lot less side effects not to mention I think I'm doing pretty darn good on it. Then came my PCP she was like right away all chilled back yup go back to pt, and I was till I had an episode... My new episodes which we all like to call Vanessa falling in to a COMA! Yeah that's right I fall into such a deep sleep it's c...
Post a Comment
Read more

Oh Gosh it December Already and All This has Happened!

Who would have known that year would go back so fast it started off rocky to say the least and now look at where I am... As January came it was sure that I wouldn't see Physical and Occupational Therapy for a while. My heart just wasn't taking it, so it seemed that was off the table till there was a solution. Although we all knew what that was we didn't want to think about it, surgery. Once the time came the doctors told my mom she'll be out in one hour that hour came and went, and I was still in surgery my cardio doctor was not taking no for an answer. My parents were updated on my status so they weren't to alarmed, but when he came out and said I was out and in recovery he explained to them that no matter their efforts my heart rate was never going to be normal at that alone was a problem. I was going to have to be a heart medication to help stabilize my heart rate, but it was almost never going to go lower then 80 beast per min. You might think that's norma...
Post a Comment
Read more