Skip to main content

Intro


I'm living with SPS better known as Stiff Person Syndrome and many other medical conditions is who I am. Don't get me wrong they are not all I am. For I'm the one person you'll meet that has more going for her self then you can ever imagine. See I've learned to live my life with an optimistic attitude, because if I didn't I wouldn't be where nor who I am today. With family by my side I've been able to over come all the obstacles put in front of me. AND with that said and done I'll explain my story with SPS and all the medical thingys going on.

Comments

  1. Great, when you emailed me with your story I was wondering what you were doing. Love this, and will be following you and in touch. Love you, Diane

    ReplyDelete

Post a Comment

Popular posts from this blog

Stiff Person Syndrome Awareness!

My friends with SPS raising AWARENESS!                         MY friends without SPS raising awareness!                                                                                  And Me...                                      

What's going on with life now!

So you might think I have it all going for me now... yeah that's not the deal see I haven't been able to go back to physical therapy or occupational therapy nor have I been able to go back to the gym. I'm on more medication then I have ever been. My cardio has given me release to go back and do all those things, but I've got obstacles after obstacles to go through. First they cardio doc wanted all my doctor's to give me the OK to go back. So second my neuro doc gave me the OK to go back to pt and ot, because I was stiffer then I was before. She continued my IVIG but keeps pushing chemo, although I don't want it I rather stay on IVIG a lot less side effects not to mention I think I'm doing pretty darn good on it. Then came my PCP she was like right away all chilled back yup go back to pt, and I was till I had an episode... My new episodes which we all like to call Vanessa falling in to a COMA! Yeah that's right I fall into such a deep sleep it's c...

Oh Gosh it December Already and All This has Happened!

Who would have known that year would go back so fast it started off rocky to say the least and now look at where I am... As January came it was sure that I wouldn't see Physical and Occupational Therapy for a while. My heart just wasn't taking it, so it seemed that was off the table till there was a solution. Although we all knew what that was we didn't want to think about it, surgery. Once the time came the doctors told my mom she'll be out in one hour that hour came and went, and I was still in surgery my cardio doctor was not taking no for an answer. My parents were updated on my status so they weren't to alarmed, but when he came out and said I was out and in recovery he explained to them that no matter their efforts my heart rate was never going to be normal at that alone was a problem. I was going to have to be a heart medication to help stabilize my heart rate, but it was almost never going to go lower then 80 beast per min. You might think that's norma...