Skip to main content

Tomorrows the day!

Tomorrows the day I go visit with my old pt dude. He was the first to explain the baclofen pump to me and explain what it was and what it could potentially help. Although since no one really knew what it was I had no doctor really wanted to touch on the subject. I'm super excited to visit, but scared of what they are going to say. See these are the guys my PCP want me to go back to their faculty, since the pt director running my case back at the other place left. My doctor has been trying to convince me to to back.

See don't get me wrong I miss the old pt dude, funny ot lady, and most of all the pt director, because she pushed me to do so much more and not allow the pain to get the best of me. She reminded how sometimes no pain meant no gain, and needed to over come the fears of falling, because no matter what she was always there to pick me right up.

I guess that's why I like the place I'm at because I felt the same way. She was all three of them at once:

Pt dude- advocated for what was best and tried to figure out what he could do to make things better. Till this day he is still doing that helping me figure out if the pump is the right thing.

Ot lady- always telling me funny stories and being silly that no matter how bad of a day you where having you always knew how to get you to smile. She also showed me how to cope with situation that I couldn't control.

And last but not least the pt director like explained before who helped push through till I finally did it walk again.

See the director that left the place I am now does all those things and she's just one person. Which is quite amazing if u ask me.

So back to tomorrow I'm going to get information about the pump and see if its right for me. Although the director that left kind of beat him to the punch with some information. LOL sorry dude should have called you sooner although you do know how my doctor was and still is.

Comments

Popular posts from this blog

Stiff Person Syndrome Awareness!

My friends with SPS raising AWARENESS!                         MY friends without SPS raising awareness!                                                                                  And Me...                                      

Stiff Person Syndrome T-shirts

I'm Hi guys here is where you can place your Stiff Person Syndrome T-shirt order. Thank you for helping raise awareness that way we can be SEEN and HEARD about this RARE  disease. It might just be the push to get help we need to get doctors understand it better, and maybe start doing more research for all of us!  Each T-shirt is $20.00  I'm using the flat rate boxes to make is easier to sort out and fast to get them out to those who order. So for 1 T-shirt it's $5.80 extra for shipping, because only one of them fits. Anything more then 1 T-shirt is $12.35 and with here you order as many T-shirts as you like.  These prices are only for the U.S. people placing orders anyone who want one from another country can email my person account at vanessa.rmz.88@gmail.com If a mistake is made in the order please return the T-shirt and I'll give you a full refund on your shipping and send you the right T-shirt.  Also read about make whatever kind of donation...

What's going on with life now!

So you might think I have it all going for me now... yeah that's not the deal see I haven't been able to go back to physical therapy or occupational therapy nor have I been able to go back to the gym. I'm on more medication then I have ever been. My cardio has given me release to go back and do all those things, but I've got obstacles after obstacles to go through. First they cardio doc wanted all my doctor's to give me the OK to go back. So second my neuro doc gave me the OK to go back to pt and ot, because I was stiffer then I was before. She continued my IVIG but keeps pushing chemo, although I don't want it I rather stay on IVIG a lot less side effects not to mention I think I'm doing pretty darn good on it. Then came my PCP she was like right away all chilled back yup go back to pt, and I was till I had an episode... My new episodes which we all like to call Vanessa falling in to a COMA! Yeah that's right I fall into such a deep sleep it's c...