A lot has happened since I've wrote last... see I've came and went to the Mayo Clinic with more question and no answers. So I've decided that my journey with the Mayo Clinic is over.
And now I'm losing faith with the doctors I have...
See things don't seem to add up anymore, and the one person who was trying to put things together is no longer at the faculty I was in. Although we still keep in touch and is helping me get though somethings.
SO as of now I got to physical therapy is three times a week and that is if they have availability since the main pt left. They try to fit me in as much as possible, and have me stay there as long as I can in order to try to get back to where I was before. Although to tell you the truth all this madness going on with the doctors and medication has just made things worst.
To start off since I came back my medication dosage has dropped drastically. See before I was on:
Tizandine 4mg every 2-4 hrs.
Baclofen 40mg twice 4x a day
Valium 7mg at night and morning as needed
and Hydrocodon as needed for pain.
This was just for my spasms see I take other medication for my other conditions.
Any how the medication for my spasms I'm taking now are:
Tizandine 4mg in the morning and 8mg in the evening
Baclofen 20mg in the morning and 40mg in the evening
Valium 10mg at night and as needed if needed
and Hydrocodon really only as needed and its forced.
See the difference?!
Well I went to see the doctor last week and she mention how I looked like I was out of it. Well that wasn't the word she used it was more like distant. Let me ask you this if you were in pain and your muscle were contracting and cramping all the time would you seem a bit distant?! So her conclusion was to place me on antidepressant.
I was upset because she doesn't understand that the reason I was like that was because of the pain and it hurt so bad, but there is no reasoning with her. She told my mom she was going to call my neuro to speak with her and see which medication would be best to put me on. Finally this morning the nurse called and said they had decided to put me on a medication for depression.
She also mention that my neuro wants to try a baclofen pump, which now after speaking to a few people I've decided to do it. I mean it worth a try and can always be taken off if it doesn't work. I thank God I've got people that help me advocate my own disease well at least the fact that they have given me the courage to do so.
So yes that is where I am today.
And now I'm losing faith with the doctors I have...
See things don't seem to add up anymore, and the one person who was trying to put things together is no longer at the faculty I was in. Although we still keep in touch and is helping me get though somethings.
SO as of now I got to physical therapy is three times a week and that is if they have availability since the main pt left. They try to fit me in as much as possible, and have me stay there as long as I can in order to try to get back to where I was before. Although to tell you the truth all this madness going on with the doctors and medication has just made things worst.
To start off since I came back my medication dosage has dropped drastically. See before I was on:
Tizandine 4mg every 2-4 hrs.
Baclofen 40mg twice 4x a day
Valium 7mg at night and morning as needed
and Hydrocodon as needed for pain.
This was just for my spasms see I take other medication for my other conditions.
Any how the medication for my spasms I'm taking now are:
Tizandine 4mg in the morning and 8mg in the evening
Baclofen 20mg in the morning and 40mg in the evening
Valium 10mg at night and as needed if needed
and Hydrocodon really only as needed and its forced.
See the difference?!
Well I went to see the doctor last week and she mention how I looked like I was out of it. Well that wasn't the word she used it was more like distant. Let me ask you this if you were in pain and your muscle were contracting and cramping all the time would you seem a bit distant?! So her conclusion was to place me on antidepressant.
I was upset because she doesn't understand that the reason I was like that was because of the pain and it hurt so bad, but there is no reasoning with her. She told my mom she was going to call my neuro to speak with her and see which medication would be best to put me on. Finally this morning the nurse called and said they had decided to put me on a medication for depression.
She also mention that my neuro wants to try a baclofen pump, which now after speaking to a few people I've decided to do it. I mean it worth a try and can always be taken off if it doesn't work. I thank God I've got people that help me advocate my own disease well at least the fact that they have given me the courage to do so.
So yes that is where I am today.
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